The Facility

It’s 8:00 am. While most high school kids are either working or sleeping this summer morning, Tylyn is in Rochester at Strong Memorial Hospital getting a Barium Swallow Study done. She hasd fasted since midnight and will have to drink the radioactive liquid and wait another 4-6 hours to eat. She napped on the way there and complained she can’t even sleep during the study. After it is over she will return home only to head off to work at a convenience store a mile from our house. She has worked there since August so the amount of intellectual requirement is little, it is the five hour shift that will bring her home tired at nine and send her directly to bed. Some how I feel that Tylyn’s aspirations of acquiring another job and working more is a moot point right now.

She jabbers of heading off to Darien Lake or swimming in the pool we just got. In addition her summer is already beginning to fill with AP summer assignments including seventy-five AP Calculus problems. She also will be studying for her retake of her SATs. Her first attempt landed her a 1470, a number she and I are both happy with. She is happy with it because it required little studying or SAT course prep and still scored better than her average classmate. I am happy due to it being such a tumultuous spring.

Her next try will be in November. I know this because she wanted to know when our visit to Colorado would be so she could reschedule.

Colorado. Four months and three days. To her it seems like she has time to study later, and for me it can not come soon enough.

When we visit we will actually be at two different hospitals.

The first is at  National Jewish Health and will be seen by Dr. David M Fleischer

Dr. Fleischer is an allergist that works in conjunction with the CH in Aurora Colorado. He has a great understanding of EE & EG and Tylyn will spend the first three days in Colorado in this facility to undergo allergy testing after her initial intake appointment with the allergist, teh GI doctor and a dietician if needed.

Afterwards we will head over to Aurora Colorado to The Children's Hospital In Colorado. There she will be seen by Dr. Glenn Furuta  in an outstanding program they have for patients suffering from Eosinophilic Diseases. For more information about the Gastrointestinal Eosinophil Disease Program click  Here. 

Dr. Furuta has an impressive resume including affiliations with the following professional membership and societies:

American Gastroenterological Association- Member
Chron's and Colitis Foundation of America - Member
International Eosinophil Society - Member
North American Society of Pediatric GI, Heptalogy and Nutrition - Research Committee, Editorial Board

Society of Pediatric Research - Member
The International Gastrointestinal Eosinophil Researchers  - Chairman

Other Helpful Links:

Cincinnati Childrens Hospital

More about Dr. Marc Rothenberg and the program at Cinninnati Children’s Hospital.   

Rare Diseases at National Institute of Health

Families Affected By Eosinophiliac Disorders (FABED)